Our world wide partnership network
We belong to the following alliances and coalitions:
International Kidney Cancer Coalition (IKCC)
The International Kidney Cancer Coalition (IKCC) is an independent international network of patient organisations that focus exclusively, or include a specific focus, on kidney cancer. It is legally incorporated as a Foundation in the Netherlands. The organisation was born from a very strong desire among various national kidney cancer patient groups to network, cooperate and share materials, knowledge, and experiences. Click here to visit their website.
Lymphoma Coalition (LC)
LC, a worldwide network of lymphoma patient groups, was formed in 2002 and incorporated as a not for profit organisation in 2010. Its express purpose is to create a level playing field of information around the world and to facilitate a community of lymphoma patient organisations to support one another’s efforts in helping patients with lymphoma receive the care and support needed. Click here to visit their website.
African Organization for Research and Training in Cancer (AORTIC)
AORTIC (African Organisation for Research and Training in Cancer) was formed in 1983 by African cancer care workers, scientists and their friends, and is dedicated to the promotion of cancer control in Africa. Click here to visit their website.
South African Health Technologies and Advocacy Coalition (SAHTAC)
SAHTAC’s mission is to advocate for an enabling environment for research, development, and access to lifesaving technologies and innovations. Click here to visit their website.
Union for International Cancer Control (UICC)
We unite and support the cancer community to reduce the global cancer burden, to promote greater equity, and to ensure that cancer control continues to be a priority in the world health and development agenda. Click here to visit their website.
SARCOMA PATIENTS EURONET (SPAEN)
Sarcoma Patients EuroNet Association (SPAEN), the international Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups, was founded in April 2009 with the aim of extending information services, patient support and advocacy to patient organisations for the benefit of sarcoma patients across the whole of Europe and internationally. Acting in partnership with clinical experts, scientific researchers, industry and other stakeholders SPAEN is working to improve the treatment and care of sarcoma patients through improving information and support, and by increasing the visibility of sarcoma with policymakers and the public. Click here to visit their website.
International Waldenstrom's Macroglobulinemia Foundation (IWMF)
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded and patient-led, nonprofit organization that is dedicated to a simple but compelling vision and mission. Click here to visit their website.
Global Lung Cancer Coalition (GLCC)
Established in 2001, the GLCC now comprises 40 non-government patient organisations from 29 nations: Argentina, Australia, Brazil, Bulgaria, Canada, Czech Republic, Denmark, Egypt, France, Germany, Ireland, Israel, Italy, Japan, Mexico, Netherlands, Norway, Peru, Portugal, Russia, Slovenia, South Africa, Spain, Sweden, Switzerland, Taiwan, Turkey, UK and US. Click here to visit their website.
The Acute Leukemia Advocates Network (ALAN)
The Acute Leukemia Advocates Network (ALAN) is an independent global network of patient organisations, dedicated to changing outcomes of patients with acute leukemias by strengthening patient advocacy in that area. It aims to build capacity in the members of the network to deliver tailored services to acute leukemia patients and carers on the national level, while joining forces between organisations on the policy and research level across countries. Click here to visit their website.
South African Journalists’ Association (SASJA)
The South African Science Journalists’ Association (SASJA) is a non-profit, non-governmental, national organisation representing science and technology journalists’ organisations in all parts of the country. The SASJA primarily represents the interest of science journalists and is designed to encourage the creation of regional chapters of SASJA in different provinces, recognising that it is a powerful tool for networking and improving science journalism. The SASJA serves as a means for science communicators and journalists from all around the country to share in the mutual benefits of a national professional organisation.
International Myeloma Foundation (IMF)
The International Myeloma Foundation (IMF) is an American non-profit organization serving patients with myeloma, a cancer of plasma cells in the bone marrow. The IMF also provides support and information for family members, caregivers of myeloma patients, physicians and nurses. The organization is dedicated to improving the quality of life for all myeloma patients by focusing on four key areas: research, education, support, and advocacy.
Chronic lymphocytic leukemia Advocates Network (CLLAN)
Chronic lymphocytic leukemia (also called CLL) is a type of blood cancer in which the bone marrow makes too many B-lymphocytes (a type of white blood cell) that accumulate in the blood, bone marrow and lymph nodes and don’t work properly. These cells don’t fight infection as well as normal white blood cells do, they build up in the blood and stop normal blood cells like red blood cells, other white blood cell and platelets from working properly. This is what causes the symptoms that people get when they have CLL.
World Bladder Cancer Patient Coalition (WBCPC)
The World Bladder Cancer Patient Coalition (WBCPC) was established in January 2019 by a group of dedicated patient advocates from three major national bladder cancer organisations that saw the need for a global bladder cancer coalition.
Our coalition now brings together 14 patient organisations from four continents, uniting the vision and goals of bladder cancer patient organisations to ensure the best possible outcomes for bladder cancer patients across the world. This coalition constitutes the first time that people affected by bladder cancer have a force connecting bladder cancer patients, groups, and organisations worldwide.
Global Colon Cancer Association
The Global Colon Cancer Association was formed in 2011 by Jola Gore-Booth, CEO of EuropaColon and Andrew Spiegel, co-founder and former CEO of the US based Colon Cancer Alliance (CCA). These organizations are the leaders in their nations in the CRC patient advocacy arena.
The vision of the GCCA is to create a global community in which people around the world can unite and battle this disease with one unified voice.
The GCCA utilizes Gore-Booth’s and Spiegel’s combined decades of experience in the CRC advocacy community to effectuate meaningful change worldwide. Gore Booth has since retired from the GCCA, but her help in launching the organization remains evident
World Patients Alliance
World Patients Alliance is the umbrella organization of patients and patients’ organizations around the globe.
The World Patients Alliance provides the platform to empower and raise the patients’ voice for the provision and access to safe, quality and affordable healthcare. We work toward ensuring patients have an active role to play in all the stages of healthcare that include planning, provision, monitoring, research and evaluation of health services. We represent patients from all world regions and across all disease areas.
GI Cancers Alliance
The GI Cancers Alliance was founded in 2015 by The Ruesch Center as a way to bring together the various GI cancer advocacy groups. The alliances’ mission is to work together as a single voice to bring awareness and education to the public on GI Cancers.
Each advocacy group maintains their personal mission, but also works with the alliance on a broader scale.
Gastrointestinal cancers are the most common form of cancer in the United States. The development of new treatments has lagged due to lack of funding.
Lung Cancer Awareness Month Coalition (LCAM)
The Lung Cancer Awareness Month Coalition is a global coalition of cancer and related organizations bringing our collective voices together to amplify the conversation around lung cancer, specifically during Lung Cancer Awareness Month in November.
By drawing attention through coordinated media and social media campaigns, we hope to expand awareness about why it is so important to talk about lung cancer, fund research and push for new treatment options around the world.
International Liver Cancer Movement (ILCM)
The International Liver Cancer Movement (ILCM) is the first ever global movement in liver cancer, bringing together patient orgs/communities, medical societies, policy makers, the private sector and other actors to work together, share resources and co-create.
Since its inception in the beginning of 2021, the ILCM has engaged patient communities, international scientific bodies, and public health institutions and partnered with organisations such as WHO EURO.
World Ovarian Cancer Coalition - WOCC
Formally established in 2016, the World Ovarian Cancer Coalition is the only global not-for-profit focused on ovarian cancer. Working with close to 200 patient advocacy organizations around the world, the Coalition is determined that everyone living with, or at risk of, ovarian cancer has the best chance of survival and the best quality of life possible, no matter where they live.
The World Ovarian Cancer Coalition builds on the significant impact of the annual flagship ovarian cancer awareness campaign – World Ovarian Cancer Day, started in 2013 and our ground-breaking Every Woman Study™ published in 2018. Building on the Study, the Coalition launched the Global Ovarian Cancer Charter in 2020. The Charter, a living document, pivots around six Global Goals and is a clear call-to-action for all those committed to improving survival and quality of life for women with ovarian cancer.
